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When Junko told us about her trip to an eye doctor resulting in a stern warning to stop using a tretinoin cream (commonly prescribed by dermatologists for the treatment of acne, age spots and wrinkles) on the grounds that it is a toxin, it gave us all a scary jolt. I have been doing as much research as possible and this post is a little long as I’ve tried to be thorough. So for those who want to cut to the car chase, tretinoin is indeed a toxin, a possible side effect is blurred vision and Junko should absolutely give up all non-dietary forms of vitamin A until her symptoms clear up.
Now for the detail. (Please note that I am continuing to add and update this post as I come across additional research).
Vitamin A and its natural and synthetic analogs are referred to as retinoids. There are several forms of retinoids: retinal (aldehyde); retinoic acid, which is also known as tretinoin (acid); and retinol (alcohol). Vitamin A is acquired through the diet and is ingested through animal sources as retinyl esters and through plant sources as carotenoids, and converted to retinol. Retinoids control normal cell growth, cell differentiation, and cell death during embryonic development and in certain tissues later in life. These effects on the cells are controlled by receptors on the nucleus of each cell (nuclear receptors).
The toxicity of retinoids and, in particular, tretinoin is well known – and has been understood by scientists for well over a decade. Research (which I go into below) has extensively been conducted on cancer patients (mostly oral doses of tretinoin) and pregnant animals, looking at topical dosage effects. It is important to note that the absorption of tretinoin is systemic. The condition caused by vitamin A toxicity is called hypervitaminosis A (source). It is caused by overconsumption of preformed vitamin A, not carotenoids. Tretinoin (Retin-A) "because of the potential for systemic absorption of topical tretinoin" is not recommended during pregnancy (source).
Retinoids are relatively new types of anti-cancer drugs. Tretinoin is given orally in capsule form to patients – typically when other forms of treatment have failed. This option of last resort is because of, as the US Institutes of Health points out, the side effects of toxicity.
It is not at all a stretch of the imagination to associate an eye condition with tretinoin reactions. First, as the Linus Pauling Institute explains, the eyes are geared towards taking in, storing and processing vitamin A. Inadequate retinol available to the retina results in impaired dark adaptation, known as "night blindness." Neurologic symptoms include headache, drowsiness, blurred vision (source).
A study on three topical retinoids, reported that “despite their differing capacities to stimulate skin repair and cell growth, all of the agents were cytotoxic for fibroblasts and epithelial cells over the same range of concentrations (0.6 – 3 10-5 M). A fairly recent 6-year trial on over 1,000 veterans set out to discover if tretinoin could be used to treat skin cancer. It was stopped six months before the scheduled end because of a high number of deaths in the tretinoin group. The concentration used was 0.1%. "We report the halting of the VATTC Trial intervention 6 months before its scheduled end date because mortality in the tretinoin-treated group was higher than in the vehicle control group, and our evaluation of this potentially causal association between tretinoin therapy and increased mortality," the study authors wrote.
Meanwhile, pregnant women shouldn’t go anywhere near tretinoin or other retinoids. Used topically, it is “a potent teratogen following exposure in early pregnancy” (source) (a teratogen is an agent that can disturb the development of an embryo or fetus). A 1997 study on rabbits, using 10 times the amount humans would typically use of the tretinoin cream, Renova. The rate of abortion was increased significantly compared with the control group. Dosage-dependent increases in incidence and severity of skin reactions occurred in groups administered the vehicle and the two dosages of tretinoin. Similar results occurred in another study with a dose of 10 mg/kg daily.
Management of vitamin A toxicity includes ensuring that all vitamin A products are discontinued, including multivitamins and topical creams. Consumption of large amounts of dietary carotenoids will not contribute to vitamin A toxicity since efficiency of absorption decreases with dosage, and conversion to the vitamin is not rapid enough to contribute to toxic levels (source).
The following Tretinoin side effects are common (occurring in greater than 30%) for patients taking Tretinoin:
Typical retinoid toxicity include symptoms that are similar to those found in patients taking high doses of vitamin A: Headache, fever, dry skin, dry mucous membranes (mouth and nose), bone pain, nausea and vomiting, rash, mouth sores, itching, sweating, eyesight changes. Plus: Flu-like symptoms, bleeding problems, infections, swelling of feet or ankles, pain (bone and joint pain, chest discomfort), abdominal pain.
The following are less common Tretinoin side effects (occurring in 10-29%) for patients receiving Tretinoin: Weight increase, heart rate irregularities (arrhythmias - see heart problems), flushing, poor appetite, weight loss, earache or feeling of fullness in the ears, diarrhea, dizziness, constipation, numbness and tingling in hands and feet, anxiety, heartburn, low blood pressure, insomnia, depression, high blood pressure, confusion (source).
October 2, 2015
by Cheryl
Thank you for sharing this information. I was looking for answers for my sister who currently has a bad rash. I googled the vitamins she takes and saw this link. I was curious to read because I use Retin-A (have been for 20 years) & experience many symptoms you described. The worse ones are vertigo/balance issues, gum issues and dry eyes. I also used Accutane about 20 years ago for 8 months. Knowing what I know now, I would have never went on that, what a horrible drug! But I didn't have the internet to search. I also take a multi vitamin with Vitamin A in it. I am going to discontinue the Retin-A & multivitamin until it's out of my system. Hoping I get some relief soon.
September 24, 2015
by Ann
I have been aware of this problem for years!!! We need to get this info out to the general public fast! Whenever I have tried any products with retinoids, I have experienced headaches, chest tightness, abdominal pain, insomnia, etc. within just a few days of using. I was prescribed Retin-A due to acne problems but went off quickly due to side effects. I've tried less potent over the counter creams with retinol and still get the same effects. It's toxic, and it's systemic meaning it is absorbed and stored in the body and builds up causing a multitude of serious problems. Some may be permanent. It should be taken off the market!
August 23, 2015
by Robin
I went through two years of living hell from using retin a. Fevers, dizziness and my mouth and throat were so dry, my uvula would become infected and swell. The side of my face would swell as well as my gums. My ears would swell shut. Left arm hurt daily and my feet and hands would go numb. CAT scan showed significant swelling in the lymphnodes on the left side of my face. Four specialists and twenty thousand dollars later, I was sent to the head onocologist at a major hospital. He did a full body pet scan to rule out lymphoma. He did every blood test you could order. He told me to stop the retin a. Two months later, I am symptom free. He told me that retin a is so very toxic to some people that it does permanent damage.
March 9, 2015
by Dottie Marsh
I have been using tretinoin for over 4 years. Using 0.1% for the last year. I have Sjogren's Syndrome and have been experiencing blurred vision, dizziness, depression, digestive problems and many of the other side effects listed above and from other individuals using Retin A. My skin suddenly begin to turn red and to be very dry no matter what I used for moisture. I stopped the tretinoin for a week now and my skin is getting better, my eyes, I feel, are getting a little better. I've had Sjogrens for 15 years. I believe the use of any type of retinoid may not be best for me and I've been doing more harm than good. So, now I'll just take care of my skin as best as possible without any form of Retin A. So glad to find information on the internet here and on other sites where individuals are having similar problems and have given websites to verify that Retin A could be damaging especially to someone who has an autoimmune disorder.
February 26, 2015
by mimi
I literaly started using tretinoin 0.05% on my face and 0.1% on parts of my body affected by acne and hyperpigmentation, only after 3 weeks into my treatment i started experiencing some of these side effects but did not associate them to my tretinoin (retinA) until reading this. i was really worried and concerned because i am not unhealthy or some whose pron to sickness or illness.
I started have heart palpitations, fever, dry skin, dry mucous, nausea, sweating, flushing, dizzy spells, anxiety, fluctuation in moods and mini panic attracts.
At first i thought it was a passing flu and sort advice, asked to check anything new in my daily regime and the only thing was the tretinoin and vitamin C tablets.
My first instinct was that the possible combination could be causing these reactions but after reading about the effects of tretinoin (retinA) on other sites i never saw any correlations and dismissed it. BUT AFTER READING YOUR ARTICLE ON THE EFFECTS OF TRETINOIN AND IDENTIFYING WITH SOME OF THEM I AM SHOCKED!!!!!
THIS HAS BEEN A REAL EYE OPENER FOR ME AND I HAVE DISCONTINUED MY VITAMIN C TABLETS WHILE ON TRETINOIN!I NO LONG SUFFER FROM ANY OF THESE SIDE EFFECTS AND I'M BACK TO GOOD HEATH BUT THIS IS SOUND INFORMATION GOING INTO TRETINOIN TO REALLY MONITOR WHAT OTHER PRODUCTS I INTRODUCE INTO MY BODY WHILE ON SUCH A SENSITIVE TREATMENT AS TRETINOIN (RETIN-A)
THANK YOU SO MUCH!!